Imperfectly Seeking Help



I’m more likely these days to celebrate Tariku’s triumphs on this blog than I am to explore our day-to-day challenges. I’m not sure why that is. Maybe the successes are just clamoring louder to be written.

But I got an email the other day from a woman parenting a child who also has Sensory Processing Disorder and PTSD. She told me that she had combed this blog for more about our struggles and had only really found the “everything is so much better” stuff. Better than what? What was it like? Please tell me, she asked.

Things are remarkably different now than they were a few years ago; it’s true. But I don’t mean to misrepresent the situation. Here’s a little snapshot:

T rises from his pillow at 5:30 like a hummingbird who has just smoked methamphetamine. That’s how he rolls all day, until we strong-arm him into bed. He wakes up with approximately one-hundred-and-forty-three questions about cloud formations and tornadoes and Cuba and sharks and death and, and, and… He’s extremely bright and curious and hilarious, but will take almost no direction. Whether it’s baking a cake or doing math or playing a piano concerto, he knows how to do it. His favorite word is no, accompanied by an impressive eye-roll. When he gets over-stimulated, he has no sense of his body in space and very little impulse control. He literally climbs the walls. They have the scuff marks to prove it. He wants to be in control of absolutely everything, including the time and the weather. It’s sort of like living with a cross between Iggy Pop and Fidel Castro.

I love every crazy minute of my son; I truly do. Just the other night we were on the bed together and I was reading while he watched TV. He reached over and took my hand. We held hands like that, while doing our own thing, for the longest time. I swear it was one of the sweetest things that’s happened in my entire life. But I don’t want to mislead you into thinking that he suddenly turned into Shirley Temple overnight.

Much of our life is still spent negotiating therapies and school intervention. Most nights I still wake in a panic at 3am, worried for him.

In fact, this morning I was just on the phone with a new counselor, who offers some innovative therapies. I talked to her about T’s trajectory thus far.

“Did you ever try so-and-so pre-school?” she asked.

“No. We heard about it. We thought about it.”

“That’s too bad. It would have been a really good fit. Their forte is working with extremely bright children with social and emotional challenges. Maybe they could still help you with an after school group. I want you to call them.”

“I…I…I don’t remember why we didn’t. It was so confusing at the time,” is all I managed to stammer.

The rest of the conversation was encouraging. We set up an appointment for an intake. I chirped something about so excited to see what the future holds and then hung up.

I put the phone down and sat, staring at the website of the special needs pre-school he didn’t attend. We’re very happy with our school now, but it looked like it would have indeed been perfect a few years ago. And even though I had already loaded on my mascara for the day, I began to weep.

The essential thing I forgot to do. The thing thing that would have helped him. And I missed it. I failed my child.

Which sends me right down the spiral of… at what am I failing right now that I’ll have to answer for at a therapist’s office in three years?

Scott’s guru guitar teacher showed up at the house as I was in the midst of this. I answered the door and actually cried on his shoulder. I barely know the guy.

He asked me tell him what was going on. So I did.

Have I mentioned I barely know this guy?

I can’t imagine what Scott was thinking. It was truly bizarro of me. But sometimes you gotta just be where you are.

“I’m not doing enough,” I sobbed. “I’m doing the wrong things.”

“Are you willing to let that story go? “ he asked me. “Because that’s just a story you’re telling yourself.”

It’s a story I often tell myself. And it’s true I’m usually getting something wrong. It’s true there are plenty of great avenues of help that we’ll never find. But all three of us are seeking help with such hope and dedication. It’s not ever enough, but it’s our best effort. Just look at our little Iggy Pop. He’s learning. He’s making friends. He’s growing all the time. He’s a wild, white-hot ball of pure love. He’s perfect. And I will fail him many times before this gig is up. But that’s just one story. There’s another in which we’re all heroes.

I deeply relate to the desperation and confusion of the woman who wrote me the letter. This isn’t an answer at all. It’s just a story about my morning. But I hope it helps.

To My Son on his Gotcha Day 2015



It was T’s “Gotcha Day” last week, which is adoption-speak for the day we finally held him for the first time. I write him a letter every year, trying to preserve for him (and me) a snapshot of who he is at that moment in time. It has been six years. Six. When did that happen? The love in my heart for this kid blows my mind every day. Here is this year’s letter to my not-a-baby-anymore:

To Tariku on his Gotcha Day:

It’s a strange phrase- Gotcha Day. The way you say “gotcha” is so cute that it has overshadowed any doubt I may have had about the name. I guess I’ve never been exactly comfortable with how glib it sounds- how completely unequal to the task of describing that transformative day when we first saw your beautiful face. I will never know that day’s equal. I’ll never forget the too-thin contours of your fragile body, the understanding in your eyes alternating with confusion and skepticism. And always, that that special joy you bring to every room you’re in, the fundamental quality of yours that trumps all else.

Here is a little snapshot of you today… six years after we first met you. Nearly seven years old. How could that be?

You are a natural musician. You have been playing drums now for a couple of years already and the look on your face when you play is somehow both expressive and serene. You often give your dad and I a hard time about practicing, but, contrary to our free-spirited nature, we’re insisting. Because if we know anything, we know that it’s all about practice. Nothing worthwhile comes magically. Or rather, it is magic. But the magic only knows where to find you if you’re practicing.

Once you’re playing, you love it. You practice with your dad. When he was getting ready for this last tour, you played the entire Everything Will Be Alright in the End album front to back nearly every day with him.

You two are even improvising your own jams now. You asked me today for a neck holder for a harmonica, so you can play harp and drums at the same time. Hang tight- it’s on its way.

On Thanksgiving, you jammed with a roomful of teenagers at the LaZebnik’s house and I was awed by your confidence. Those kids adore you. You have such a big, wonderful tribe. There is so much love for you, it could blow the ceiling off the house.

You are an incredibly social kid. You are obsessed with birthdays, particularly your own. You start planning your next party about three days after the last. You make guest lists and wish lists and play lists. Don’t worry- we’re going to throw you an epic bash. Of course we will!

You hate that I limit your time staring at a screen, which is a big conflict for a lot of parents right now. I can’t wait to see how the next generation’s brains evolve, developing new ways of processing information. But with no crystal ball, how can I be sure what’s the best way to monitor your use of technology? Technology has given a lot to my life and I am as guilty as anyone of being glued to one screen or another a lot of the time. But I worry about your brain. About how the constant, distracting information barrage might impede your ability to think and feel deeply.

But I probably needn’t fret about that. You are and always have been a deep well, with a heavy history for such a little boy. Somehow you’re able to effortlessly combine that depth with your natural hilarity and mischief. You are very funny. You just mastered the “orange you glad I didn’t say banana” knock-knock joke and I doubt it will be your last.

The one thing I don’t limit is your treasured time investigating Google maps.

“What’s the biggest city in China?” you’ll call out to me as I do the laundry downstairs.

“What is the big airport in Tokyo?”

“This is where polar bears live!”

“This is the Indian Ocean!”

Lately your career ambitions as 1. Weezer drummer and 2. airplane painter, have been supplanted by your aspirations to be a medic. You are currently running a large dinosaur hospital, where the dinosaurs are bandaged with Scotch tape and toilet paper.

It is impossible to say what I am most proud of in you, but if I had to pick one thing it would be this kindness and caretaking, which doesn’t stop at dinosaurs but extends to your friends and family, too. Compassion is something that you’ve had to work on over the years. When you came to us, you were such a fierce, self-sufficient little thing; it was every man for himself. It seemed every move you made was meant to convey the sentiment: “I got this. Don’t bother, bumbling big people.” You still screech whenever anyone tries to help you with homework. But slowly you are learning to give and receive help and trust. Until very recently all the dinosaurs did was fight each other and then get shoved under the couch. Now they’re healing in your hospital.

You like math and science. You like the earth and the sea and the animals and the stars and the plants.

You still love your airplanes as much as ever. You go to the airport every Saturday and watch those giant beasts take off and land, take off and land, over and over. You never tire of it.

It is these things that captivate you these days: healing and flight. Because you, my wild and glorious boy, go straight for the miracles.

As I say to you every night before bed… I love you to the moon and back a thousand million billion times. You’re the best thing that ever happened to your dad and me. I can’t wait to see what this next year reveals to all of us.

With big crazy love always,



Not Bad at All


The crumbling gingerbread house is barely hanging in there on the dining room table, next to my menorah from Hebrew school graduation. The fake log made of coffee grounds is fake crackling in the fireplace. The cranky child is finally asleep. The PMS tea is steeping. The computer paper snowflakes are clothes-pinned to the barn lights. The tree is my best one yet; really, it is. Our house guest walked into the house this evening, looked at it and just said, “Thank you.” I shed a little tear.

The world is quiet, save the soft churning of the dishwasher and the washing machine. Which is to say: quiet enough. It’s never quite the Hallmark card/Pinterest board/Barbie Dream House, is it? But it’s still pretty great.

The thing that comes to mind are Snoopy’s words of wisdom from You’re a Good Man Charlie Brown (Yes, I played Snoopy in summer camp. Of course I did. Rachel Weintraub, witness!):

Not bad. It’s not bad at all.

Love you all tonight. I’m sure that’s a song, too.


Then and Now


We spent a remarkable weekend with T’s “first friends.” Unprompted by me, he calls them his brothers and sisters. The first picture is of the kids when they were still living in a care center in Addis Ababa, Ethiopia. The second one is of the same kids now (in almost the same order- wrangling challenges). I don’t even have words for the juxtaposition of these photos. Just look at these sweet, bright stars. The weekend was hilarious and touching and hard and big and real. I miss the other families already.

I had no idea what Tariku’s adoption would bring into our lives. It’s hard to remember, when sunk in the daily minutiae of mopping an inch bathwater off the floor or arm wrestling for the iPad or trying to teach subtraction. He has truly razed so many walls in my heart. Scott and I just wanted a baby. We weren’t looking explode our world. A bright light turned on all at once and we now have a network of strong and inspiring extended family. Our awareness has expanded and issues like race, belonging, family, trauma, and healing have moved to the forefront of our thoughts and our discussions. We are more compassionate. Above all, we know waaaaay more about airplanes than we ever could have dreamed.

I always knew he was a miracle, I just didn’t grasp the scope of it.



group 3